Is graded exercise and pacing helpful for sufferers of ME/Chronic fatigue syndrome?
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Is graded exercise and pacing helpful for sufferers of ME/Chronic fatigue syndrome?

Hi guys,
 
I just came across an article through CHIS, which had a bit of information about graded exercise and pacing for sufferers of ME/CFS. I know its a bit of a controversial and confusing thing to consider when you are unwell so here is some guidance. I should also mention that this is only my opinion from what I have learned from my own experiences and also working with others suffering from the condition.
 
A study was conducted to test behavioural therapy and graded exercise for sufferers of ME and chronic fatigue syndrome. The article stated that:
 
"Of the 2,763 people with ME who took part in our 2008 survey, 82% found pacing helpful, compared with 50% for cognitive behavioural therapy and 45% for graded exercise therapy.
"Worryingly, 34% reported that graded exercise therapy made them worse."
 
It was noted in the article that the charity Action for M.E said that the conclusions were exaggerated and they didn't back them. I would absolutely agree that not only 34% would have been made worse by graded exercise, but that the percentage was probably much much higher due to my experience of working with patients with this condition. I was also told to do graded exercise and I feel that it is a bad idea for most people. If the body is already in a heightened stress state, any form of exercise or struggling against the condition could only put the body into a higher state of emergency and burn out, contributing to increased and more intense symptoms. This is what I have found to be true for most of my clients, and myself also.
 
I tend to feel that rather than do exercise to get better, use a form of therapy to retrain the stress response and return the body to more normal levels, (in my opinion, EFT is a fantastic and simply way to do this) and then introduce exercise as your body is able in a gentle way. Gradual exercise is in no way a cure and to me could only really worsen the state the patient is in, however if anyone has found this helpful I would like to hear more about it. I'd like to know of others experiences. I think that because the medical profession have nothing to offer as far as therapy and treatment goes, gradual exercise is the only advice generally going because they simply don't have any knowledge or training for the condition.
 
We can only hope that over time more knowledge and awareness will become commonplace in the doctors office, and that hopefully people will try alternative options too.
 
:) Kelly
 

8 Comments to Is graded exercise and pacing helpful for sufferers of ME/Chronic fatigue syndrome?:

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Katarina on Tuesday, March 08, 2011 5:04 PM
Hi Kelly It was so refreshing to see a Scottish woman on the Youtube channel. Your videos are honestly top class and you are a very very good teacher!(I have seen many EFT, CFS, nutrition etc) My experiences with Pacing are positive, not ‘curing’ but managing my CFS. I have had CFS for over 3 years, being diagnosed about 2 years ago. I have been given a very detailed handout about Pacing and Stress & Fatigue. That was actually ALL of the support I have been given from NHS. Fortunately, it did help me a lot initially. I suffered from lot of pain of back, neck, arm, joints and could not keep a cuppa in my right hand. Most of the pains and stress were due to overwork, overtime, bad diet, relationship problems and finally redundancy.. My last straw was possibly the building works at my workplace (we had to work in the dust and noise), after which my health and energy sharply declined and I also got a very bad flu soon after. After this, I could not even keep a part time job, specially arranged for me. Before the illness, I was a very active hillwalker, cycled everywhere and liked to socialise. This was just to explain my background, which could be a big clue to what therapies are likely to work? In my opinion, it can vary in different people. Previous health history, the environment we are living in, toxic and nutritional status can all play a big role. My problem now is, after managing those worst months, I want to forget about my problem from time to time and pretend I am normal. I easily overdo things, like going for shopping, or for longer walk or, my worst nightmare, being somewhere with strong lighting and noise (even TV or being on the bus is still overwhelming for me). That is why I find Pacing useful, TO REALISE MY DAILY LIMIT AND BE HAPPY WITH MYSELF, EVEN THOUGH NOT DOING TOO MUCH, NOT WORKING, NOT LIVING NORMAL LIFE. On the other side, there are times I do need to sleep a lot and Pacing reminds me that I should keep my body moving, even if it is just walking downstairs to try and make a lunch. I have discovered EFT few months ago and recently took part in Ortner’s Tapping Summit. I did not get any visible results, but they did not focus on CFS in the first place. I find EFT most useful in dealing with stressful situations or low feelings. For me, it is hard to believe, that EFT would help me long term to heal all underlying causes of CFS but it can address some! I view tapping as something I will be using to get on with my daily challenges. I hope this was not too long or boring to read. We all are trying to find the ways to cope. Every time I hear about ‘full recovery’, I am very careful no to jump up. As I said before, taking into account all of the previous history is probably a good start to find a clue for true healing. People tested for heavy metals seem to get healed by proper detoxing. People with stress issues usually have depleted adrenals and they react well to nourishing adrenal glands and supporting all endocrine system (it could be also through EFT). There can be lots of overlaps. In your case, could it be that you were already running a stressful ‘wired life’, before your car accident? EFT seems to work great for stress, but if there are other problems in the body, it may need more complex approach.
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Kelly on Friday, March 11, 2011 12:13 PM
Hi Katarina, thanks for the message! Sorry for the delay in replying but I wanted to make sure I had enough time to get a good chat :) Thanks so much for your kind comments on my Youtube videos, I hope my accent is understandable lol. As you mentioned about the stress at work, I have found that there tends to be a 'last straw' trigger that tips us over the edge into ME/CFS and also sometimes into other illnesses too. Listening to your background is helpful, and gives me an idea of the stress and traumas to your system that may have triggered the illness. Personally I use EFT and also matrix reimprinting therapy and I haven't yet found anything more effective for the condition. This is, in my opinion because I believe ME is caused by a malfunction in the stress response, as I mentioned the stressful event that is the last straw sends the body into red alert and the stress response becomes hypersensitive. This relates to the hypothalamus which controls many major functions in your body; digestive system, body temperature, sleep patterns, tissue renewal etc etc therefore causing chaos within the body. By tapping on the acupressure points it has been proven in studies that it directly affects the brains stress response and turns it down a bit like a dimmer switch. Therefore, if you can tap on the events which caused it to malfunction in the first place, then you can reset the sensitivity to normal levels and potentially get well. However, within EFT we tend to consider the bodys energies very important. If you can change your energy, and the blocks within it, you can change your health. I feel that I am proof of that :) Also we believe that stressful and traumatic events cause disruptions in the bodys energy system, which over time with the lack of vital energy flowing, and the disrupted or blocked passageways, the body begins to develop aches and pains or illnesses etc. this is not to deny that many people are born with hereditary conditions; cell biologist Dr Bruce Lipton suggests that around 5% of all illness and disease are hereditary, and that 95% of all illness is caused by stress. The more you learn about it it's so interesting and exciting to think of the possibilities! I can remember myself when it took all my strength to stand and even make a sandwich for lunch. Not fun. And also very disheartening when you feel you cant rely on your body. Its pretty scary. Your message was definitely not boring as I can relate to a lot of the things you have said and it wasn't really all that long ago that I was there myself. I totally understand you not wanting to jump in and have full hopes at first, I always felt the same way myself and I think its healthy to feel that way until you are proven otherwise. Hope my reply wasn't too long either haha, warmest, Kelly
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Kelly on Friday, March 11, 2011 12:13 PM
Hi Katarina, thanks for the message! Sorry for the delay in replying but I wanted to make sure I had enough time to get a good chat :) Thanks so much for your kind comments on my Youtube videos, I hope my accent is understandable lol. As you mentioned about the stress at work, I have found that there tends to be a 'last straw' trigger that tips us over the edge into ME/CFS and also sometimes into other illnesses too. Listening to your background is helpful, and gives me an idea of the stress and traumas to your system that may have triggered the illness. Personally I use EFT and also matrix reimprinting therapy and I haven't yet found anything more effective for the condition. This is, in my opinion because I believe ME is caused by a malfunction in the stress response, as I mentioned the stressful event that is the last straw sends the body into red alert and the stress response becomes hypersensitive. This relates to the hypothalamus which controls many major functions in your body; digestive system, body temperature, sleep patterns, tissue renewal etc etc therefore causing chaos within the body. By tapping on the acupressure points it has been proven in studies that it directly affects the brains stress response and turns it down a bit like a dimmer switch. Therefore, if you can tap on the events which caused it to malfunction in the first place, then you can reset the sensitivity to normal levels and potentially get well. However, within EFT we tend to consider the bodys energies very important. If you can change your energy, and the blocks within it, you can change your health. I feel that I am proof of that :) Also we believe that stressful and traumatic events cause disruptions in the bodys energy system, which over time with the lack of vital energy flowing, and the disrupted or blocked passageways, the body begins to develop aches and pains or illnesses etc. this is not to deny that many people are born with hereditary conditions; cell biologist Dr Bruce Lipton suggests that around 5% of all illness and disease are hereditary, and that 95% of all illness is caused by stress. The more you learn about it it's so interesting and exciting to think of the possibilities! I can remember myself when it took all my strength to stand and even make a sandwich for lunch. Not fun. And also very disheartening when you feel you cant rely on your body. Its pretty scary. Your message was definitely not boring as I can relate to a lot of the things you have said and it wasn't really all that long ago that I was there myself. I totally understand you not wanting to jump in and have full hopes at first, I always felt the same way myself and I think its healthy to feel that way until you are proven otherwise. Hope my reply wasn't too long either haha, warmest, Kelly
Reply to comment


Kelly on Friday, March 11, 2011 12:14 PM
Hi Katarina, thanks for the message! Sorry for the delay in replying but I wanted to make sure I had enough time to get a good chat :) Thanks so much for your kind comments on my Youtube videos, I hope my accent is understandable lol. As you mentioned about the stress at work, I have found that there tends to be a 'last straw' trigger that tips us over the edge into ME/CFS and also sometimes into other illnesses too. Listening to your background is helpful, and gives me an idea of the stress and traumas to your system that may have triggered the illness. Personally I use EFT and also matrix reimprinting therapy and I haven't yet found anything more effective for the condition. This is, in my opinion because I believe ME is caused by a malfunction in the stress response, as I mentioned the stressful event that is the last straw sends the body into red alert and the stress response becomes hypersensitive. This relates to the hypothalamus which controls many major functions in your body; digestive system, body temperature, sleep patterns, tissue renewal etc etc therefore causing chaos within the body. By tapping on the acupressure points it has been proven in studies that it directly affects the brains stress response and turns it down a bit like a dimmer switch. Therefore, if you can tap on the events which caused it to malfunction in the first place, then you can reset the sensitivity to normal levels and potentially get well. However, within EFT we tend to consider the bodys energies very important. If you can change your energy, and the blocks within it, you can change your health. I feel that I am proof of that :) Also we believe that stressful and traumatic events cause disruptions in the bodys energy system, which over time with the lack of vital energy flowing, and the disrupted or blocked passageways, the body begins to develop aches and pains or illnesses etc. this is not to deny that many people are born with hereditary conditions; cell biologist Dr Bruce Lipton suggests that around 5% of all illness and disease are hereditary, and that 95% of all illness is caused by stress. The more you learn about it it's so interesting and exciting to think of the possibilities! I can remember myself when it took all my strength to stand and even make a sandwich for lunch. Not fun. And also very disheartening when you feel you cant rely on your body. Its pretty scary. Your message was definitely not boring as I can relate to a lot of the things you have said and it wasn't really all that long ago that I was there myself. I totally understand you not wanting to jump in and have full hopes at first, I always felt the same way myself and I think its healthy to feel that way until you are proven otherwise. Hope my reply wasn't too long either haha, warmest, Kelly
Reply to comment


Kelly on Friday, March 11, 2011 12:14 PM
Hi Katarina, thanks for the message! Sorry for the delay in replying but I wanted to make sure I had enough time to get a good chat :) Thanks so much for your kind comments on my Youtube videos, I hope my accent is understandable lol. As you mentioned about the stress at work, I have found that there tends to be a 'last straw' trigger that tips us over the edge into ME/CFS and also sometimes into other illnesses too. Listening to your background is helpful, and gives me an idea of the stress and traumas to your system that may have triggered the illness. Personally I use EFT and also matrix reimprinting therapy and I haven't yet found anything more effective for the condition. This is, in my opinion because I believe ME is caused by a malfunction in the stress response, as I mentioned the stressful event that is the last straw sends the body into red alert and the stress response becomes hypersensitive. This relates to the hypothalamus which controls many major functions in your body; digestive system, body temperature, sleep patterns, tissue renewal etc etc therefore causing chaos within the body. By tapping on the acupressure points it has been proven in studies that it directly affects the brains stress response and turns it down a bit like a dimmer switch. Therefore, if you can tap on the events which caused it to malfunction in the first place, then you can reset the sensitivity to normal levels and potentially get well. However, within EFT we tend to consider the bodys energies very important. If you can change your energy, and the blocks within it, you can change your health. I feel that I am proof of that :) Also we believe that stressful and traumatic events cause disruptions in the bodys energy system, which over time with the lack of vital energy flowing, and the disrupted or blocked passageways, the body begins to develop aches and pains or illnesses etc. this is not to deny that many people are born with hereditary conditions; cell biologist Dr Bruce Lipton suggests that around 5% of all illness and disease are hereditary, and that 95% of all illness is caused by stress. The more you learn about it it's so interesting and exciting to think of the possibilities! I can remember myself when it took all my strength to stand and even make a sandwich for lunch. Not fun. And also very disheartening when you feel you cant rely on your body. Its pretty scary. Your message was definitely not boring as I can relate to a lot of the things you have said and it wasn't really all that long ago that I was there myself. I totally understand you not wanting to jump in and have full hopes at first, I always felt the same way myself and I think its healthy to feel that way until you are proven otherwise. Hope my reply wasn't too long either haha, warmest, Kelly
Reply to comment


Katarina on Tuesday, March 15, 2011 4:52 PM
Thanks Kelly, this is a very useful reply and especially this is crucial to remember - "This relates to the hypothalamus which controls many major functions in your body; digestive system, body temperature, sleep patterns, tissue renewal etc etc". And also the following "Therefore, if you can tap on the events which caused it to malfunction in the first place, then you can reset the sensitivity to normal levels and potentially get well." Repeated few times but we all need it. I am going to try it...!
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Kat on Tuesday, March 15, 2011 5:07 PM
I briefly read one of your articles about how important is to tap on different levels and that long term chronic illness is not going to be sorted in days or weeks. It looks like I have a long journey in front of me! Thanks againg for making this inspiring information available on the web. As reaction to describing your car accident, it made me think it could be possible that the damage occuring in HPA (hypothalamic-pituitary-adrenal axis) in 2 seconds of extreme stress (crash) equals experiencing lower level but long term stress. Fast-forward damage, rather than gradual sensitising over years but with similar result and similar treatment.
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Kat on Tuesday, March 15, 2011 5:22 PM
As this post should be about Pacing, not to confuse everyone, I just want to say that Pacing can mean as little as to add 2 minutes to your activity daily or weekly(i.e. standing). There are people like rock climbers who have CFS/ME and still live for climbing and do not want to give up. Instead of doing half day climb, they go and just touch the rock, doing few easy steps up. During the last Summer, I had a series of therapies which made me feel great. I went for 3 hour very slow but still "hill" walk above our house. Came down ok, a bit tired but nothing major. On the following day and 5 consequent days after I could hardly move again. My symptoms returned - this was an example of not doing Pacing right. Hope this helps to explain what pacing is for.
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